Category : News & Events

With Thanks: Support from the Sara Rosen Tribute Fund

The Kidney Health Education and Research Group at the Multi-organ Transplant Program, University Health Network is extremely grateful to the Sara Rosen Tribute Fund and the Rosen Family for their ongoing support. We thank the Sara Rosen Tribute Fund for the generous grant of $18,000 in 2019 to support our work. Your donation goes a long way in pushing the frontiers for chronic kidney disease research and improving care for patients whose lives are affected by the life-changing disease. If you are […]

Conferences in Sunny San Diego: PHO and ISOQOL Conferences

The KHERG team was pleased to participate in the 26th annual International Society for Quality of Life Research (ISOQOL) conference from October 20th to 23rd 2019, followed by the Patient Health Outcomes (PHO) conference from October 24-25th, 2019. Both conferences were held in sunny San Diego, California. The conference was a great opportunity to connect and learn from researchers working with patient reported outcome measures (PROMs) worldwide. Research students Jack Zhang and Sumaya Dano were able to present and share […]

Transplant in the Rocky Mountains

From October 16th to 19th, 2019, KHERG was excited to be a part of the Canadian Transplant Summit in Banff, Alberta. The conference was held in a stunningly scenic setting surrounded by the Rocky Mountains and frequently visited by herds of elk. It was in this natural space that the team had an opportunity to present our latest research on equitable access to living organ donation as well as our work on the use of PROMIS in patients on dialysis […]

Measuring what matters to patients

The Canadian Institutes of Health Research has sponsored our study where we will develop an electronic Patient Reported Outcome Measures toolkit intended for clinical use in transplant recipients. This toolkit will help transplant recipients and clinical care teams identify relevant physical and emotional symptoms that require further assessment and potential intervention in order to improve their care.  Solid-organ transplantation is a life-saving treatment. Many recipients, however, still have symptoms, such as fatigue, pain, anxiety or depression after their transplant. Patients with these symptoms may end up in […]

Developing an Electronic Patient Reported Outcome Measures Toolkit

The Canadian Institutes of Health Research has sponsored our study where we will be developing an electronic Patient Reported Outcome Measures toolkit intended for clinical use in transplant recipients. This toolkit will help transplant recipients and clinical care teams identify relevant physical and emotional symptoms that require further assessment and potential intervention in order to improve their care.  As part of this project, we will engage solid organ transplant recipients and their caregivers in focus groups discussions to identify and prioritize symptoms and concerns to be included for […]

Heart Transplant experiences at Heartlinks

Heartlinks is a heart transplant support group that hosts events where patients and caregivers have to opportunity to socialize and discuss important topics related to heart transplants. On Oct-5th 2019, Dr. Istvan Mucsi attended a Heartlinks event where cardiologist Dr.Carolina Alba gave a great talk on research and program updates in Heart Transplantation at the University Health Network. At the event, Dr.Mucsi spoke about different the physical and emotional symptom burden experienced by transplant recipients, and the use of questionnaires […]

Kidney Talk with Dixon Hall Neighbourhood Services

On September 19th, 2019, the Dixon Hall Neighborhood Services hosted the Kidney Health Education and Research Group in an event aimed at raising awareness of kidney health, chronic kidney disease, and prevention in the Chinese community. The presentation was delivered in both English and Mandarin with the hopes of fostering a climate of inclusion with our Chinese community and to encourage more fruitful discussions about kidney health and living kidney donation. We began the event by distributing a survey focusing […]

A TEST

Association Between Dialysis Facility Ownership and Access to Kidney Transplantation

JenniferC.Gander,PhD; XingyuZhang,PhD; KatherineRoss,MPH; AdamS.Wilk,PhD; LauraMcPherson,MPH; TeriBrowne,PhD; StephenO.Pastan,MD; ElizabethWalker,MS; ZhenshengWang,PhD; RachelE.Patzer,PhD,MPH In this retrospective cohort study that included 1 478 564 patients with end -stage kidney disease treated at 6511 US dialysis facilities from 2000 – 2016, patients receiving dialysis at for -profit facilities vs nonprofit facilities had significantly lower 5 -year cumulative incidence rates for placement on the deceased donor kidney transplantation waiting list (−13.2%), receipt of a living donor kidney transplant (−2.3%), and receipt of a deceased donor kidney […]

Equity and Access in Living Organ Donation

On Monday, September 16th, 2019 the UHN Centre for Living Organ Donation hosted their first annual Living Organ Donation Symposium. The focus of the event was on equity and access to living organ donation and featured a wide range of speakers and attendees representing healthcare, transplant, and community organizations. During the event, attendees were engaged in learning about living kidney and liver donation and the benefits or living donor transplant from Dr. Sunita Singh and Dr. Mark Cattral. The Symposium […]

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