Category : News & Events

Heart Transplant experiences at Heartlinks

Heartlinks is a heart transplant support group that hosts events where patients and caregivers have to opportunity to socialize and discuss important topics related to heart transplants. On Oct-5th 2019, Dr. Istvan Mucsi attended a Heartlinks event where cardiologist Dr.Carolina Alba gave a great talk on research and program updates in Heart Transplantation at the University Health Network. At the event, Dr.Mucsi spoke about different the physical and emotional symptom burden experienced by transplant recipients, and the use of questionnaires […]

Kidney Talk with Dixon Hall Neighbourhood Services

On September 19th, 2019, the Dixon Hall Neighborhood Services hosted the Kidney Health Education and Research Group in an event aimed at raising awareness of kidney health, chronic kidney disease, and prevention in the Chinese community. The presentation was delivered in both English and Mandarin with the hopes of fostering a climate of inclusion with our Chinese community and to encourage more fruitful discussions about kidney health and living kidney donation. We began the event by distributing a survey focusing […]

Association Between Dialysis Facility Ownership and Access to Kidney Transplantation

JenniferC.Gander,PhD; XingyuZhang,PhD; KatherineRoss,MPH; AdamS.Wilk,PhD; LauraMcPherson,MPH; TeriBrowne,PhD; StephenO.Pastan,MD; ElizabethWalker,MS; ZhenshengWang,PhD; RachelE.Patzer,PhD,MPH In this retrospective cohort study that included 1 478 564 patients with end -stage kidney disease treated at 6511 US dialysis facilities from 2000 – 2016, patients receiving dialysis at for -profit facilities vs nonprofit facilities had significantly lower 5 -year cumulative incidence rates for placement on the deceased donor kidney transplantation waiting list (−13.2%), receipt of a living donor kidney transplant (−2.3%), and receipt of a deceased donor kidney […]

Equity and Access in Living Organ Donation

On Monday, September 16th, 2019 the UHN Centre for Living Organ Donation hosted their first annual Living Organ Donation Symposium. The focus of the event was on equity and access to living organ donation and featured a wide range of speakers and attendees representing healthcare, transplant, and community organizations. During the event, attendees were engaged in learning about living kidney and liver donation and the benefits or living donor transplant from Dr. Sunita Singh and Dr. Mark Cattral. The Symposium […]

Kidney Talks at Al Falah Islamic Centre

On Sunday, September 8th, 2019, the Kidney Health Education and Research Group held a collaborative event at the Al Falah Islamic Center in Oakville, alongside the presence of the Kidney Foundation of Canada and the Trillium Gift of Life Network regarding Organ Donation and Transplantation in Islam.  The event began with Imam/Doctor Nazir Khan educating attendees on the permissibility of organ donation through an Islamic lens. He also explained Sharia law (Islamic laws) to dismantle common misbeliefs Muslims have regarding […]

Kidney Transplants from Donors with HCV Safe and Functional 1 Year Post-Transplantation

In a JASN analysis of 2015–2019 transplant registry data on the use of kidneys from US donors infected with hepatitis C virus (HCV), researchers found that there has been a substantial increase in the number of transplants using HCV-infected kidneys. There also has been a change in the use of HCV-infected kidneys: until September 2018, most HCV-infected kidneys were transplanted into patients with pre-existing HCV, but since then, the majority of HCV-infected kidneys were transplanted into patients without the infection. The investigators also […]

Marilyn Verghis from the William Osler Health System speaking from the podium

8th Annual Health Equity Summit

On August 7th, 2019, the Council of Agencies Serving South Asians hosted their 8th annual Health Equity Summit and brought together stakeholders from government, hospitals, and the nonprofit sector to address health inequities affecting the South Asian and other racialized communities in the GTA. The aim of this year’s Summit was to gather community input on a health equity strategy from these communities by exploring key issues affecting the community and discussing ways to engage the current government through research […]

Carefirst Seniors & Community Services Association logo

Partnering with Carefirst Seniors & Community Health Services

The Kidney Health Education and Research Group ventured to Scarborough during the week of July 29th to distribute our community survey at Carefirst Seniors & Community Health Services. Our team was grateful for the opportunity to meet the Carefirst community and talk with clients about our work. We were glad to see that many individuals were excited to contribute to our research study on Barriers to Living Donor Kidney Transplantation. By completing our survey on knowledge and attitudes towards kidney […]

Kidney Foundation of Canada logo

Patient reported outcome tools for better assessment and patient centered kidney care

Patient-centred care integrates patients’ perspectives into assessment and treatment planning. Patient-Reported Outcome Measures (PROMs) are essential to patient-centred care since they collect information directly from patients about their perspective on their health and treatment. Tools such as the Patient Reported Outcomes Measurement Information System (PROMIS) have been developed and validated in different patient populations to assess for relevant domains in patients with chronic illnesses. Validated clinical assessment tools such as PROMIS will promote patient centered care and satisfaction as patient’s […]

Improving care for transplant patients using standard questionnaires to measure symptoms, distress and quality of life

Although solid-organ transplantation is a life-saving treatment, almost half of recipients experience symptoms of fatigue, pain, anxiety, or depression after the transplant. Current post-transplant care does not include screening for these symptoms which may go undetected and can even lead to hospitalization. Better addressing these symptoms can improve patients’ quality of life and health.   Patient Reported Outcome Measures (PROMs) are questionnaires that can be used to detect these emotional and physical symptoms. When PROMs are completed electronically by patients, […]