Our Mission

Enhancing kidney health, advancing collaborative care, and empowering communities through ethnoculturally competent and patient-centered outcomes research

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CORONAVIRUS AND HEALTH

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COPING WITH THE STRESS OF THE CORONAVIRUS

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MENTAL HEALTH

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Our Work

What do you think about kidney donation and transplantation?

Educating Ontario About Transplants

We educate patients about kidney transplants and organ donations, while providing Ontario clinicians with resources to support their patients.

Understanding and Reducing Barriers to Transplantation

We research patients’ concerns and beliefs about kidney disease, transplantation, and organ donation. In response, we create accessible, culturally relevant resources that answers concerns, promotes equitable access to transplants and overcomes barriers.

Advancing Patient-Centred Care

We research how Patient-Reported Outcomes measurement tools can help people with chronic kidney disease and help clinicians provide patient-centred care. Our research assesses existing tools and is used to create new tools. The tools we develop are electronic and assess Patient-Reported Outcomes to improve kidney transplant recipients’ long-term health outcomes, wellbeing and patient care.

Recent Publications

Could Symptom Burden Predict Subsequent Healthcare Use in Patients With End Stage Kidney Disease on Hemodialysis Care? A Prospective, Preliminary Study
Jing C Zhang, Salam El-Majzoub, Madeline Li, Tibyan Ahmed, Joyce Wu, Mark L Lipman, Ghizlane Moussaoui, Karl J Looper, Marta Novak, Soham Rej, Istvan Mucsi
2020;42(1):294‐301. DOI: 10.1080/0886022X.2020.1744449

Organ Donation and Transplant: The Islamic Perspective.
Ali A, Ahmed T, Ayub A, Dano S, Khalid M, El-Dassouki N, Orchanian-Cheff A, Alibhai S, Mucsi I.
Clin Transplant. 2020 Feb 18:e13832. doi: 10.1111/ctr.13832. [Epub ahead of print]

Evaluating symptom burden in kidney transplant recipients: validation of the revised Edmonton Symptom Assessment System for kidney transplant recipients – a single-center, cross-sectional study.
Dano S, Pokarowski M, Liao B, Tang E, Ekundayo O, Li V, Edwards N, Ford H, Novak M, Mucsi I.
Transpl Int. 2020 Jan 9. doi: 10.1111/tri.13572. [Epub ahead of print]

Ethnic background is associated with no live kidney donor identified at the time of first transplant assessment-an opportunity missed? A single-center retrospective cohort study.
Vedadi A, Bansal A, Yung P, Famure O, Mitchell M, Waterman AD, Singh SK, Novak M, Kim SJ, Mucsi I.
Transpl Int. 2019 Oct;32(10):1030-1043. doi: 10.1111/tri.13476. Epub 2019 Jul 12.

Substance use in kidney transplant candidates and its impact on access to kidney transplantation.
Tang E, Bansal A, Famure O, Keszei A, Novak M, Kim SJ, Mucsi I.
Clin Transplant. 2019 Jun;33(6):e13565. doi: 10.1111/ctr.13565. Epub 2019 May 7.

Validation of the Patient-Reported Outcomes Measurement Information System (PROMIS)-57 and -29 item short forms among kidney transplant recipients.
Tang E, Ekundayo O, Peipert JD, Edwards N, Bansal A, Richardson C, Bartlett SJ, Howell D, Li M, Cella D, Novak M, Mucsi I.
Qual Life Res. 2019 Mar;28(3):815-827. doi: 10.1007/s11136-018-2058-2. Epub 2018 Nov 22

Psychosocial Distress and Health Service Utilization in Patients Undergoing Hemodialysis: A Prospective Study.
El-Majzoub S, Mucsi I, Li M, Moussaoui G, Lipman ML, Looper KJ, Novak M, Rej S.
Psychosomatics. 2019 Jul – Aug;60(4):385-392. doi: 10.1016/j.psym.2018.10.001. Epub 2018 Oct 10.

Explore Transplant Ontario: Adapting the Explore Transplant Education Program to Facilitate Informed Decision Making About Kidney Transplantation.
Mucsi I, Novak M, Toews D, Waterman A.
Can J Kidney Health Dis. 2018 Jul 24;5:2054358118789369. doi: 10.1177/2054358118789369. eCollection 2018.

Mental health assessment of altruistic non-directed kidney donors: An EAPM consensus statement.
Potts S, Vitinius F, Erim Y, Gazdag G, Gribble R, Ismail SYS, Massey EK, Maldonado J, Mucsi I, Novak M, Niazi SK, Schneekloth TD, Syngelakis M, Zimbrean P.
J Psychosom Res. 2018 Apr;107:26-32. doi: 10.1016/j.jpsychores.2017.12.001. Epub 2017 Dec 14.

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