Kidney Health Education and Research Group

Our Mission

Enhancing kidney health, advancing collaborative care, and empowering communities through ethnoculturally competent and patient-centered outcomes research

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Our Work

What do you think about kidney donation and transplantation?

Educating Ontario About Transplants

We educate patients about kidney transplants and organ donations, while providing Ontario clinicians with resources to support their patients.

Understanding and Reducing Barriers to Transplantation

We research patients’ concerns and beliefs about kidney disease, transplantation, and organ donation. In response, we create accessible, culturally relevant resources that answers concerns, promotes equitable access to transplants and overcomes barriers.

Advancing Patient-Centred Care

We research how Patient-Reported Outcomes measurement tools can help people with chronic kidney disease and help clinicians provide patient-centred care. Our research assesses existing tools and is used to create new tools. The tools we develop are electronic and assess Patient-Reported Outcomes to improve kidney transplant recipients’ long-term health outcomes, wellbeing and patient care.

Recent Publications

Assessing Fatigue in Patients Receiving Kidney Replacement Therapy Using PROMIS Computer Adaptive Testing
Dano S, Hussain J, Edwards N, Sun YI, Li M, Howell D, Peipert JD, Novak M, Bartlett SJ, Mucsi I.
Am J Kidney Dis. 2023 Mar 9:S0272-6386(23)00561-9. doi: 10.1053/j.ajkd.2022.12.018. Online ahead of print. PMID: 36906218

Two-step screening for depressive symptoms in patients treated with kidney replacement therapies – cross-sectional analysis
Dano S, Lan HH, Macanovic S, Bartlett S, Howell D, Li M, Hanmer J, Peipert JD, Novak M, Mucsi I.
Nephrol Dial Transplant. 2022 Sep 12:gfac262. doi: 10.1093/ndt/gfac262. Online ahead of print. PMID: 36095145

Validation of the PROMIS sleep disturbance item bank computer adaptive test (CAT) in patients on renal replacement therapy
Hussain J, Chawla G, Rafiqzad H, Huang S, Bartlett SJ, Li M, Howell D, Peipert JD, Novak M, Mucsi I.
Sleep Med. 2022 Feb;90:36-43. doi: 10.1016/j.sleep.2022.01.001. Epub 2022 Jan 10. PMID: 35091171

Evaluation of PROMIS Preference Scoring System (PROPr) in Patients Undergoing Hemodialysis or Kidney Transplant.
Zhang J, Dewitt B, Tang E, Breitner D, Saqib M, Li D, Siddiqui R, Edwards N, Peipert J, Hays R, Hanmer J, Mucsi I.
Clin J Am Soc Nephrol. 2021 Jul 16:CJN.01880221. doi: 10.2215/CJN.01880221. Epub ahead of print. PMID: 34272256.

Pre-Transplant Patient Education in Solid Organ Transplant: A Narrative Review.
Hamid M, Rogers E, Chawla G, Gill J, Macanovic S, Mucsi I.
Transplantation. 2021 Jul 13. doi: 10.1097/TP.0000000000003893. Epub ahead of print. PMID: 34260472.

Brief Mindfulness Intervention vs. Health Enhancement Program for Patients Undergoing Dialysis: A Randomized Controlled Trial.
Nassim M, Park H, Dikaios E, Potes A, Elbaz S, Mc Veigh C, Lipman M, Novak M, Trinh E, Alam A, Suri RS, Thomas Z, Torres-Platas S, Vasudev A, Sasi N, Gautier M, Mucsi I, Noble H, Rej S.
Healthcare (Basel). 2021 Jun 1;9(6):659. doi: 10.3390/healthcare9060659. PMID: 34205915; PMCID: PMC8228217.

Screening for symptoms of anxiety and depression in patients treated with renal replacement therapy: utility of the Edmonton Symptom Assessment System-Revised.
Tang E, Dano S, Edwards N, Macanovic S, Ford H, Bartlett S, Howell D, Li M, Novak M, Mucsi I.
Qual Life Res. 2021 Jun 17. doi: 10.1007/s11136-021-02910-5. Epub ahead of print. PMID: 34138450.

A narrative review of current evidence supporting the implementation of electronic patient- reported outcome measures in the management of chronic diseases.
Aiyegbusi OL, Nair D, Peipert JD, Schick-Makaroff K, Mucsi I.
Ther Adv Chronic Dis. 2021 May 24;12:20406223211015958. doi: 10.1177/20406223211015958. PMID: 34104376; PMCID: PMC8150668.

Barriers to Accessing Kidney Transplantation Among Populations Marginalized by Race and Ethnicity in Canada: A Scoping Review Part 1-Indigenous Communities in Canada.
El-Dassouki N, Wong D, Toews DM, Gill J, Edwards B, Orchanian-Cheff A, Smith M, Neves P, Marshall LJ, Mucsi I.
Can J Kidney Health Dis. 2021 Mar 3;8:2054358121996835. doi: 10.1177/2054358121996835. PMID: 33738107; PMCID: PMC7934025.

Barriers to Accessing Kidney Transplantation Among Populations Marginalized by Race and Ethnicity in Canada: A Scoping Review Part 2-East Asian, South Asian, and African, Caribbean, and Black Canadians.
El-Dassouki N, Wong D, Toews DM, Gill J, Edwards B, Orchanian-Cheff A, Neves P, Marshall LJ, Mucsi I.
Can J Kidney Health Dis. 2021 Mar 3;8:2054358121996834. doi: 10.1177/2054358121996834. PMID: 33738106; PMCID: PMC7934034.

Organ donation and transplant: The Islamic perspective.
Ali A, Ahmed T, Ayub A, Dano S, Khalid M, El-Dassouki N, Orchanian-Cheff A, Alibhai S, Mucsi I.
Clin Transplant. 2020 Apr;34(4):e13832. doi: 10.1111/ctr.13832. Epub 2020 Mar 11. PMID: 32068915.

Evaluating symptom burden in kidney transplant recipients: validation of the revised Edmonton Symptom Assessment System for kidney transplant recipients – a single-center, cross-sectional study.
Dano S, Pokarowski M, Liao B, Tang E, Ekundayo O, Li V, Edwards N, Ford H, Novak M, Mucsi I.
Transpl Int. 2020 Apr;33(4):423-436. doi: 10.1111/tri.13572. Epub 2020 Jan 30. PMID: 31919903.

Ethnic background is associated with no live kidney donor identified at the time of first transplant assessment-an opportunity missed? A single-center retrospective cohort study.
Vedadi A, Bansal A, Yung P, Famure O, Mitchell M, Waterman AD, Singh SK, Novak M, Kim SJ, Mucsi I.
Transpl Int. 2019 Oct;32(10):1030-1043. doi: 10.1111/tri.13476. Epub 2019 Jul 12. PMID: 31250484.

Validation of the Patient- Reported Outcomes Measurement Information System (PROMIS)-57 and -29 item short forms among kidney transplant recipients.
Tang E, Ekundayo O, Peipert JD, Edwards N, Bansal A, Richardson C, Bartlett SJ, Howell D, Li M, Cella D, Novak M, Mucsi I.
Qual Life Res. 2019 Mar;28(3):815-827. doi: 10.1007/s11136-018-2058-2. Epub 2018 Nov 22. PMID: 30467780.

Explore Transplant Ontario: Adapting the Explore Transplant Education Program to Facilitate Informed Decision Making About Kidney Transplantation.
Mucsi I, Novak M, Toews D, Waterman A.
Can J Kidney Health Dis. 2018 Jul 24;5:2054358118789369. doi: 10.1177/2054358118789369. PMID: 30057772; PMCID: PMC6058418.

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