Advancing Patient-Centred Care - Kidney Health Education and Research Group

Advancing Patient-Centred Care

One area of our research aims to promote and advance patient-centred care in the treatment of patients living with chronic kidney disease. Quality patient care requires patients to be able to communicate their symptoms and how they feel with their health care providers. Open communication between patients and clinicians can be supported with the use of Patient-Reported Outcomes (PROs).

Patient-Reported Outcomes are health outcomes reported directly by patients based on their own experience of it. These include quality of life, symptoms, function, physical health, mental health, and social health. PROs are fundamental for clinicians in order to determine if health care services, procedures and treatments are improving or impacting their patients’ health and quality of life.

PRO measures (PROMs) are tools that enable clinicians to gather this information. Studies have shown that PROMs are effective in specific patient populations, but only limited research has been done to determine they are applicable to patients with chronic kidney disease. Our research looks at how to make use of PROMs to benefit patients with chronic kidney disease and the clinicians who treat them by:

How to Get Involved

Contact us at We welcome collaborations with researchers, community partnerships, volunteers, and research students.

If you are applying to join our team as a research student or volunteer, email us with:

  1. Resume
  2. Motivation letter (1 page)
  3. Transcript (if applicable)

How to Support Us

We are a non-profit organization and your support goes a long way in pushing the frontier for chronic kidney disease research and improving care for patients whose lives are affected by the life-changing disease. If you are able to, we invite you to support our work.

Support this work

See also

Validating Patient-Reported Outcomes Measurement Tools to Assess Patients with Chronic Kidney Disease
Developing Electronic Patient-Reported Outcome Measurement Toolkit for Transplant Recipients and Candidates