Category : News & Events

South Asian Cultural Project Community Partnerships

In the last week of November, we organized a talk led by Dr. Istvan Mucsi as part of our ongoing community outreach to explore ethno-cultural barriers to living donor kidney transplantation in the South Asian community. We are happy to have partnered up with the Punjabi Community Health Services (PCHS) for this presentation. PCHS is a not-for-profit, charitable health service provider organization focused on empowering diverse communities. Some of their programs include empowering newcomers to integrate into Canadian society, providing […]

KHERG Member Wins ISOQOL Student Oral Presentation Award

Congratulations to Sumaya Dano, MSc candidate at the Institute of Medical Science, University of Toronto, for receiving the 2019 Student Oral Presentation Award, Student and New Investigator Awards. Every year the International Society for Quality of Life Research (ISOQOL) recognizes the best overall oral and poster presentations at the Annual Conference made by full-time students and investigators in the early stages of their career. The ISOQUOL is a global community of researchers, clinicians, healthcare professionals, industry professionals, consultants, and patient […]

Partnership with Black Health Alliance

As part of our research exploring ethnocultural barriers to living donor kidney transplantation (LDKT), we are honoured to be working with the Black Health Alliance on a joint venture to understand and address barriers to LDKT in the diverse African, Caribbean, and Black (ACB) communities in Ontario. The Black Health Alliance is a community-led charitable organization working to improve the health and wellbeing of Black communities in Canada. The Black Health Alliance champions health equity through engaging in systems change, […]

Our collaboration with Council of Agencies Serving South Asians

Within the framework of KHERG’s research examining ethnocultural barriers to living donor kidney transplantation (LDKT), we are partnering with the Council of Agencies Serving South Asians (CASSA) to raise awareness of kidney disease and organ donation in the South Asian community of Toronto. CASSA is an umbrella organization that supports and works to empower agencies, groups, and individuals who provide services to the South Asian community. KHERG and CASSA have joined forces to engage the community in conversations about barriers […]

Kidney Talk: Part 2 with Dixon Hall Neighbourhood Services

On October 31st, 2019, KHERG was excited to be invited back to Dixon Hall Neighbourhood Services to deliver the second part of our presentation on kidney health and transplantation. Despite the rainy weather, we were happy to see the familiar faces of community members who attended our first kidney health presentation with Dixon Hall in September. During our October session, a volunteer with the Chinese Renal Association spoke about her experience with Chronic Kidney Disease and how her kidney transplant […]

With Thanks: Support from the Sara Rosen Tribute Fund

The Kidney Health Education and Research Group at the Multi-organ Transplant Program, University Health Network is extremely grateful to the Sara Rosen Tribute Fund and the Rosen Family for their ongoing support. We thank the Sara Rosen Tribute Fund for the generous grant of $18,000 in 2019 to support our work. Your donation goes a long way in pushing the frontiers for chronic kidney disease research and improving care for patients whose lives are affected by the life-changing disease. If you are […]

Conferences in Sunny San Diego: PHO and ISOQOL Conferences

The KHERG team was pleased to participate in the 26th annual International Society for Quality of Life Research (ISOQOL) conference from October 20th to 23rd 2019, followed by the Patient Health Outcomes (PHO) conference from October 24-25th, 2019. Both conferences were held in sunny San Diego, California. The conference was a great opportunity to connect and learn from researchers working with patient reported outcome measures (PROMs) worldwide. Research students Jack Zhang and Sumaya Dano were able to present and share […]

Transplant in the Rocky Mountains

From October 16th to 19th, 2019, KHERG was excited to be a part of the Canadian Transplant Summit in Banff, Alberta. The conference was held in a stunningly scenic setting surrounded by the Rocky Mountains and frequently visited by herds of elk. It was in this natural space that the team had an opportunity to present our latest research on equitable access to living organ donation as well as our work on the use of PROMIS in patients on dialysis […]

Measuring what matters to patients

The Canadian Institutes of Health Research has sponsored our study where we will develop an electronic Patient Reported Outcome Measures toolkit intended for clinical use in transplant recipients. This toolkit will help transplant recipients and clinical care teams identify relevant physical and emotional symptoms that require further assessment and potential intervention in order to improve their care.  Solid-organ transplantation is a life-saving treatment. Many recipients, however, still have symptoms, such as fatigue, pain, anxiety or depression after their transplant. Patients with these symptoms may end up in […]

Developing an Electronic Patient Reported Outcome Measures Toolkit

The Canadian Institutes of Health Research has sponsored our study where we will be developing an electronic Patient Reported Outcome Measures toolkit intended for clinical use in transplant recipients. This toolkit will help transplant recipients and clinical care teams identify relevant physical and emotional symptoms that require further assessment and potential intervention in order to improve their care.  As part of this project, we will engage solid organ transplant recipients and their caregivers in focus groups discussions to identify and prioritize symptoms and concerns to be included for […]