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Patient Reported Outcome Measures for patients with Chronic Kidney Disease: The case for Patient Reported Outcomes Measurement Information System (PROMIS-R) tools.


No Online Article

Date
2023

Authors
Tang E.*, Yantsis A.*, Ho M., Hussain J., Dano S., Aiyegbusi O.L., Peipert J.D., Mucsi I.

Subject
N/A

Abstract
Chronic Kidney Disease (CKD), kidney failure and kidney replacement therapies (dialysis and kidney transplant) are associated with high physical and psychological symptom burden and impaired health related quality of life (HRQOL). Symptom severity changes with disease progression and with changes in treatment modality. Symptoms frequently go unreported and unmanaged. Consequently, tools that reliably monitor symptoms may help improve the comprehensive management of patients with CKD. Patient-reported outcome measures (PROMs) assess and quantify symptom severity, physical, psychological, social and cognitive functioning, treatment related side effects and HRQOL. The systematic use of PROMs in clinical care can improve patient-provider communication, patient satisfaction, clinical outcomes, and HRQOL. However, potential barriers, including lack of patient and clinician engagement, response burden, and a lack of guidance about PROM collection, score interpretation and integration into the clinical workflow, may hinder the clinical use of PROMs. Importantly, well defined, acceptable and effective clinical response pathways are essential for implementing PROMs in clinical care. PROMs developed by the Patient-Reported Outcomes Measurement Information System (PROMIS) address some of the challenges and may be suitable for clinical use among patients with CKD. PROMIS tools assess multiple patient-valued, clinically actionable symptoms and functions. They can be administered as fixed length, customized short forms, or computer adaptive tests, which offer precise measurement across a wide range of symptom severity or function levels, tailor questions to the individual patients, and reduce question burden. Here we provide an overview of the potential use of PROMs in CKD care, with a focus on the innovative PROMIS tools.