Member's paper - Kidney Health Education and Research Group

Abstract

Patients on maintenance dialysis with a Family History of Kidney Disease have more Transplant Knowledge

Maroof Khalid, BMSc1, Oladapo Ekundayo, MD1, Navneet Singh, HBSc1, Vardaan Gupta, HBSc1, Yu-Ying Liao1, Maryam Omran1, Istvan Mucsi, MD, PhD, FRCPC, FASN1

2018

Canadian Society of Transplant

Full Abstract
Introduction: Better transplant knowledge helps patients with End Stage Kidney Disease (ESKD) deal with challenges associated with their condition; it may also help patients to better navigate the process of accessing kidney transplantaion. Social support and sharing of lifetime experiences contribute to knowledge aquisition about illness and self-management. Here we explore the association between having family history of kidney disease and kidney transplant (KT) related knowledge among patients with ESKD. Methods: A cross-sectional convenience sample of patients with ESKD on maintenance dialysis from several dialysis units in Toronto. Baseline socio-demographic and clinical data were collected using a tablet-based electronic data capture system and medical records. This was used to assess family history of kidney disease (exposure). A standard questionnaire was used to determine transplant knowledge (outcome). Univariable associations were tested using Chi-square test. Multivariable adjusted linear/logistic regression models were used to assess the association between the exposure and outcome variables. Results: Among the 400 participants (mean age 58 (13), 62% male), 125 had family history of kidney disease. The mean (SD) knowledge score for those with vs. without a family history was 7.1 (3.0) vs. 6.2 (3.0) (p=0.01). After adjusting for socio - demographic and clinical factors such as age, gender, ethnicity, income, educational levels, and Charlson Co-Comorbidity Index, patients with a family history were significantly more likely to have ?high? KT knowledge (OR 1.60, CI=1.01 ? 2.52, p=0.045). In a linear regression model using the knowledge scores as the dependent variable, this association was also significant after adjusting for the same factors (?-coeff 0.59, CI=0 ? 1.18, p=0.49). Conclusion: Participants of this study with compared to without family history of kidney disease demonstrated significantly more kidney transplant related knowledge. Potentially incorporating support networks into the transplant education process may improve knowledge acquisition and eventually access to transplantation.

Member’s paper

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