Psychosocial and ethnocultural barriers to living donor kidney transplantation (UHN 15-9775-AE) - Kidney Health Education and Research Group

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Psychosocial and ethnocultural barriers to living donor kidney transplantation (UHN 15-9775-AE)

Mucsi-Novak Group

Living donor kidney transplantation is the best treatment for many patients with end-stage kidney disease, since it provides better survival, better quality of life than dialysis and the waiting time is much shorter compared to deceased donor transplant. Our preliminary data suggest that patients with depression and patients with African or Asian background have substantially less chance to get a living donor kidney transplant compared to patients without depression, or to Caucasian patients. The underlying reasons for these disparities are not well understood.

In the quantitative arm of this mixed-methods study, we will enroll potential kidney transplant candidates and collect data about their transplant related knowledge, attitudes, fears and concerns in addition to sociodemographic and ethnocultural characteristics. We will also assess depression and anxiety to analyze if these factors constitute barriers to accessing the living donor kidney transplantation.
In the second, qualitative part of this study, we will conduct focus groups and one-on-one interviews with patients of different ethnocultural backgrounds to better understand their attitudes, beliefs and concerns about chronic kidney disease and living donor kidney transplant.

Recent Activity (2017)

  • Publication: April 2017: Ethnic Background Is a Potential Barrier to Living Donor Kidney Transplantation in Canada: A Single-Center Retrospective Cohort Study
  • New study site: This fall, we are preparing to expand the Barriers quantitative study from Toronto General Hospital and Humber River Hospital to St. Michael’s Hospital. We have submitted research ethics protocols to several other GTA hospitals and look forward to expanding Barriers to these sites as well.
  • Focus groups: The first focus group for the qualitative arm of this Barriers study was held at Toronto General Hospital on October 5, 2017, moderated by Dr. Marta Novak and Dr. Rinat Nissim from University Health Network. As we continue to add participants to the Barriers quantitative study, we are also identifying potential participants representing the Chinese, South Asian and Muslim Canadian communities to take part in focus groups centred on transplant-related issues and barriers encountered by patients with ESKD in these communities.
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