Patient-reported outcomes (PROs), such as symptoms, health- related quality of life (HRQOL), or satisfaction with care, are reported directly by the patient, without interpretation by the clinician or a family member/caregiver. These outcomes inform clinicians and researchers about patient’s challenges and sources of suffering, and they provide information that supplements “traditional” clinical outcomes, such as mortality or hospitalization. PROs are valued by patients, clinicians, and policy-makers. They inform therapeutic choices, disease management practices, reimbursement decisions, and health policy.
PRO measures (PROMs) help to better understand and to reduce the burden of disease and to improve overall well-being, in addition to prolonging life.
In this pilot study, participants (120 patients) were patients on chronic dialysis, kidney transplant recipients or patients with earlier stages of chronic kidney disease.
We explored the patients' acceptance of tablet computer-based, self-administered questionnaires and collected pilot data about the prevalence of mental health and psychosocial issues and concerns as well as ethno-cultural factors among patients with advanced chronic kidney disease.