Access to Kidney Transplantation Launch – October 2017

The Enable Access to Kidney Transplantation and Living Donation (ENAKT-LD) initiative had its official launch event on October 23-24, 2017, at the Crowne Plaza Airport Hotel in Toronto. ENAKT-LD is co-led by the Ontario Renal Network (ORN) and the Trillium Gift of Life Network (TGLN), the main hosts of the launch. This province-wide initiative aims to improve opportunities for, and access to, living donation and kidney transplantation for all individuals living with chronic kidney disease (CKD) in Ontario, Canada. The launch was attended by:

  • Quality improvement teams from 13 of 26 regional renal programs in Ontario
  • Kidney transplant recipients and donorsExplore Transplant Ontario
  • Transplant centre nephrologists and coordinators who evaluate kidney transplant recipients
  • Living donor program nephrologists and coordinators who evaluate kidney donors
  • Leadership and staff members from ORN and TGLN

Among the individuals who presented at the event were:

  • Dr. Amit Garg of ORN
  • Several Ontario kidney transplant recipients and living donors who are now peer mentors to others who are contemplating kidney transplantation
  • Transplantation researcher Dr. Rachel Patzer, who described patterns of ethnocultural disparity in accessing kidney transplant in Georgia as well as educational initiatives developed there to address modifiable disparities such as health literacy and transplant knowledge
  • Transplant nephrologist and researcher Dr. Istvan Mucsi, who described the work he and Dr. Marta Novak and our team did to adapt a U.S. education program called Explore Transplant  for use in Ontario, and the subsequent Explore Transplant Ontario pilot study completed by our team
  • Dr. Amy Waterman, transplant education expert and developer of Explore Transplant, who introduced participants to the Explore Transplant Ontario education program that Dr. Mucsi’s team successfully piloted in 2016-2017 and will now be used in renal programs across Ontario 

About ENAKT-LD. The four key pieces of ENAKT-LD, introduced at the launch, are:

  1. A peer mentoring (Transplant Ambassador) program, where kidney donors and recipients share their experiences with patients with severe chronic kidney disease
  2. Transplant education in the form of a core curriculum for frontline renal staff and for patients
  3. Data sharing, audit and feedback to track impact of these education and mentoring programs
  4. Administrative support from ORN

Transplant education. Education on kidney transplant for patients, families and frontline staff (chiefly, those outside of transplant centres) is a major pillar of the ENAKT-LD initiative. Dr. Mucsi described how the ENAKT-LD education task group will engage in recruiting and training volunteers to serve as education support navigators, who will support frontline renal staff in delivering transplant education to patients. The second day of the launch focused on introducing the Explore Transplant Ontario education program, which will be an important piece of a curated KT education portfolio for transplant-eligible patients with CKD. Explore Transplant Ontario Dr. Waterman introduced Explore Transplant Ontario to the frontline renal staff at the launch event, and they will receive in-service KT education and ongoing support on how to use ETO with patients. 

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